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Old Aug 21, 2011, 08:56 AM
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jk2833 jk2833 is offline
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Member Since: Jul 2011
Location: london
Posts: 246
Quote:
Originally Posted by yellowted View Post
sorry to say but NHS therapy is so over needed and under staffed that it will probably take around 18 months to get an assessement, then three months to be offered sessions and then you will probably get one hour per week for 6 weeks and only if you really need more may you be put back on the waiting list for another 6 sessions!
hope is on the horizon in some areas as the local councils/PCT are trying to see how they can improve the service... not much use at the moment though.
my advice is look into getting an IMCA advocate, POHWER is a great service, free and very well worth looking into, i had major difficulties trying to get Adult services to apply for a DFG to adapt my home among other things, after comlplaining to the head of my CMHT, head of adult servoices, the local council corperate complaints manager and my local MP i got myself a POHWER advocate, and within a month Adult services have agreed to support an aplication, they have yet to appy but hey it is a big victory just getting them to agree to support it after 3 years of bumping upstairs on my bum to get to a toilet!
the condition i have may have got better if i had received the correct treatment (physio and talking therapy running paralell) at the onset, but typical NHS i got physio ok but the talking therapy came far too late and was not long enough to make a difference, so my physio stopped too! two years on they still are messing me around!
POHWER are based in a number of locations in the UK, they have offices in Southwark for sure and the advocates are willing to travel quite a distance.their main number is not in london, but they will be able to point you in the right direction.. if you want the number PM me and i will get it to you.
Other places for advice/help in resolving your difficulties with the NHS are :-
your local PALS (patient advice leason service) ask at your GPs for the number or get it from local hosiptal,
CAB (citizens advice beuro)
your borough should have a mental health advocacy service, phone the council to find out, though if they are like the one in my borough you are better off without them!!!
try sending your complaint to your local councils 'corprate complaints manager' as talking therapies are funded by the council PCT (primary care trust) rather than the NHS.
good luck both of you x
Hi thanks for all the replies,there seems to be a lot of people having the same issues with mental health NHS.
I've got a great GP but she won't do a thing without a psychiatrists say so,and the practice manager has also been good but they can't do anything to help in the mean time.
PALS have been really helpful and supportive and have also investigated certain elements of the complaint,I got an reply each time I contacted them and I've asked them to see what's going on with the complaint as it is stated that I should be 'kept informed throughout the complaint' hmm well I haven't. I saw my neurologist and he is fuming due to the impact of my mental state regarding my epilepsy,he too is writing a letter.
Hard to believe this started last year with an urgent referral that took 6months,its not like I'm a stranger to them at mental health,I've been mentally ill since the age of 9!
Sorry for the rant guys and thanks again,take care
JK