I am leading a very similar life. People can't see migraines or feel them like you do, so the pain must not really be that bad...it's just a headache, right?
Many people don't get it and many neurologists don't get it and they act like there is nothing they can do to help. It leaves us backed into a corner, in so much pain that there is little you can do to help yourself, and everyone ignoring you. I was on Topamax as well and then they said they didn't want me taking it because I am a thin person (I was only ever on 25mg & they wouldn't give me more). I've tried nearly every preventative medication in the book, as well as everything to treat the migraines. I often have them for multiple days in a row and have to take Relpax day after day. I was on Imitrex injections, but they gave me horrible side effects & Relpax seems to have less side effects, although it is not perfect by any means. So now they really can't think of anything preventative to put me on b/c they have tried everything without success. I am on beta-blockers for high blood pressure so who knows if that does anything for my migraines. I always get multiple migraines a weak with little relief. Nobody seems to understand that I can't stay in bed day after day. The docs seem like they don't understand how much this interferes with daily life and they are out of solutions so they just throw in the towel. Narcotics have worked for me, but good luck finding any doc that will give you them for migraines.
Very frustrating!
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