(((PFM)))
I wish that I could help you. An experienced doctor is going to be the only one that can find the answers that I'm so eager to help you find!
If you haven't already, do print out a copy (or two) of these discussions ~ it will come in handy when do you go in to see the neurologist. That way you're prepared to give complete explanations of the incidents.
My thoughts are with you, your daughter, and bf. Medical assistance may truly be worth looking into. I can't remember what state you're living in... but MA would pay for doctor visits, necessary tests, medications, etc. Go to your state website and click on MA. They will have information there, to help determine whether or not you are a possible beneficiary of receiving assistance.
Gentle hugs to you