wow, I can't even imagine what this must be like.

sorry for all that you have been through.
I know this may not sound all that helpful, but have you told yr pdoc this? maybe even, have you ever gone over this with a new T before starting with him/her? I know that no one has a crystal ball on the future, but there are so many people on PC who have been with same T for 5/10/15 yrs or more.
maybe yr insistent pdoc can come up with some concrete suggestions, instead of just laying down ultimatums. hugs to you ((((((((( rdv )))))))))