Well if you feel well enough to take on the paperwork that is involved, it is not that bad. Usually you just have to submit a recert app every year, send in proof of income-copy of your SSDI or income.
I am really sorry this has happened, it was that persons job to do that for you, and if they couldn't let their supervisor know.
You can call their supervisor and see if they can help, you were counting on this getting done.