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Old Dec 10, 2011, 11:33 PM
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kindachaotic kindachaotic is offline
Grand Poohbah
 
Member Since: Aug 2011
Location: Southeast US
Posts: 1,834
United, Hello & Welcome! Look around at the forums & keep posting.

I'm not in your shoes & can't imagime the struggles you & your daughter face.

Again, knowing nothing about how tiring this can be, do you really think there will be a time when you won't have any feelings for her anymore? If so this is a very brave & honest statement. I say that because I raised a mentally challenged son & many times I had to leave work to "handle something". There was more than one time I remember saying I just wanted him to go away or I wish he'd never been born. Those things were said under extreme stress & I didn't think I could take another day. But I do & always will love my son & he is happy to see me. No one knows what you go thru until they walk in your shoes.

You say there's a limit as to how much you can bear. Do you have a spouse or relatives to help? Also any services nurse, therapy, an aid for bathing, dressing, diapers, to wheel her for a walk outside? Just trying to think of anything to help you not feel so overwhelmed. In my city there is a Society for Cerebral Palsy or something like that you might check on what they offer. You may know all this stuff already but thought I'd offer anyway.

As for your sleep troubles maybe a call to your own doc, or therapist if you have one, is in order. We're not professionals here & just try to make it thru the day also. Not to minimize your anguish but we are always here to listen & let you know we care.

Sending many hugs your way!