That's awful, I'm so sorry for all of you.

I feel the same way about my brother who has brittle bones and was expected to die many years ago, although he's still surviving, somehow.
Sometimes I feel what I would describe as a little bell in my stomach, and I always look at the clock to see what time it is, expecting someone to phone me to tell me that he died at that time.
Its horrible that I'm waiting for it, but I know when it happens I'll feel it.

So sorry for you x