I don't know if you're coming back to this forum anytime soon, but if you do, HI Mary!
Our system has a Mary too. She is ALSO very, very freezing cold! We're not sure why, either. Look for some blankets! I'm going to leave some blankets with her teddy if she's out and about and cold.
As far as wanting to stay out, try to remember about sharing. You need a break too, a rest, a time to warm up. Perhaps someone in your system can give you a cuddle or play toys with you while you wait for your turn? They most likely want to support you and take care of you. Sometimes it's really frustrating, and everyone feels frustrated (mad or angry) sometimes.
hope that helps!
~Y
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