I was actually about to start a thread asking if there were any people out there actually on their own with this.
I am, for sure. I am not lonely, but I sure as hell have no practical or emotional support with this. It terrifies me for the future.
Trippin, I have almost no friends either. It's not that I drove them away, it's that I never had them in the first place. Because I never made any effort. My fault totally.
I have a bf but he's very much as sillyfab describes her man

When he has tried to help with any illness (not BP) in the past, I have ended up looking after him instead. I don't think he has even looked up BP.
My family is in another country and only my brother knows, not my parents.
I have an-ex friend who is callous, selfish and generally toxic, and another who is an immature attention-seeker. (This has all been confirmed by third parties

).
Trippin, I'm thinking along the same lines. Go it alone. I guess that's why I was wondering if anyone here already is going it alone.
Also - I can't tell you how much I relate to feeling invisible. Seriously.
I'm glad you're here - you are definitely not invisible to me