Oh, that does sound frustrating. I just got to the brighter end of the tunnel after three days of misery and have been thinking back over the times when I had six months worth but cannot imagine twenty years.

Have you ever been in a pain group (others going through what you are) or tried many alternative treatments? I do wish there were some magic treatment or obvious reason for hope. I usually just keep putting one foot in front of the other, crying with the pain and frustration when it gets too much and distracting myself when I can; researching when I'm able and trying any and everything, including doing "nothing", just "resting" in the pain for as long as I can.

Do you have a pain journal, have a good friend or counselor you can talk to? Any good doctor's you like?