That was an odd visit.

Doc I guess listened as well as he wanted. Treats you a bit like a machine. He didn't suggest the same med again.

Fortunately and unfortunately my labs were about the same as last year. No new organ damage (a little low on kidney but stable and nothing alarming), but also no worsening of low iron... rather a little better. Too bad since that is fixable.

Since now there are only followups, my GP will do all that now. Oh well. Or just as well.

My last rheumy said I do indeed have Lupus and Sjogrens, I have a lot of the symptoms, I am feeling really crappy all the time and I have the labs and antibodies for it. This rheumy said I do have the antibodies, and I'm ill. But he took the diagnoses away. Because.... he cannot test the Sjogrens and he thinks I don't have enough organ damage for Lupus.

I don't know what to think.

It shouldn't matter, since if I get worse there is treatment, and then I would be rediagnosed. But it ticks me off that I now have NOTHING according to him. It sure doesn't feel like nothing when you cannot even climb the stairs to the second floor without gasping for air. He understands I'm ill, but not with "anything".

The only thing he could say for certain is I have BP. I sort of woke up from my mildness and said WHAT? Then I had to set him straight that I've never been diagnosed BP and my mental diagnoses are different. I have no idea where that stuff came from.

So I'm sicker with this than last check. Yet I lost the two of my diagnoses. I forgot to ask if this gets me out of the risk group. I certainly hopes not. I depend a lot on this, if nothing else for the free flu shot. Around here, those are restricted and not everyone can get them. If I get flu I end up semi-dead in hospital because this what is now undiagnosed wrecked my immune system.

Anyway I made it home. And in a way it feels good he won't be my doctor anymore.