So, I suffer with pain every day, sometimes very bad, often bearable, but always there. It doesn't always keep me up at night because I sleep so heavily, and often sleep is my only releif. The only time I've had slight relief of this while awake was on Seroquel, and I can't continue to take it for simply that reason.

Mostly it is in my joints, specifically my shoulders, elbows, wrists, hands, neck, entire spite and ribs, and often my hips as well. I have been told many of my ribs are out of place. My GP said I have carple tunnel in my wrists, but I don't think it can spread all the way through my body!? I crack all the time, my joints crack almost every time I move (or sometimes just shift positions), and get very stiff and painful to the point I have to crack them to make the pain lessen. I have very little feeling in my body now, especially to crushing feelings, and to hot and cold.

My friends descovered a few months ago that my bones are actually flexible. They tested it by bending my arm bones between their hands, and by crushing my hands. I couldn't really feel any of it to be honest, but I was not surprised. They were freaking out. I have had all my fingers locked in a car truck hatch before, and not break. Admittedly they were squished smaller than the bone should have been, but nothing was broken, and my hands were barely bruised.

I don't often complain about this, or even mention it to people. And if it does come up it is always more of a "party trick" than a complaint. I have only brought it up briefly with my doctor when it got to the point I couldn't type (I have to type because handwriting always hurts, and makes it hard to think because of an LD), but left it after that. What makes it hard is that I'm 20, dealing with a lot of MI's, and "look" healthy.

I don't know what to do or who to tell, or if medication is worth it. If I start meds for it now, I won't have anything strong enough when I'm older. And it might just distract from everything else. I guess what I'm asking is, do I count? Is this real? Half the time I wonder if I only imagine the pain, because I'm so good at ignoring it usually. It's the one thing I can honestly say hasn't ever controlled me because I worth through it, even if it makes me cry.

Will it just get worse? Should I see my dr? I don't even know what they could do...

I just wanted someone to know. I've been living with this since grade 6. I'm now in 3rd year university.