Quote:
Originally Posted by billi_leli
I am bumping up this topic and reading it again and I want to let the ppl who responded to me that I really appreciated what they said to me on this.
I am still having a hard time sleeping.
....
So now I found a new medical doctor and he gave me some dilantin for my pain, (caused now by trigeminal neuralgia resulting from too much dental work at once and too much period!) but now I am scared that they have similar side effects to the seroquel. I just read that they affect the cerebellum, which controls breathing! It also affects memory and that's already going!
Like my status says, I am "unsure of my next step".
I want to sleep.
I probably could even train myself to if the pain would only not flare up at night.
and the dilantin is supposed to help.
But it has dangerous side effects, according to some research I have been doing---again the doc never tells you anything---even if you ask! ( and of course I said to him, "Are there any side effects I should know about?)
Well, patients will tell you, but many (not all) doctors will not. Otherwise, they risk the patients not taking the drugs and that hurts their business or their sense of ethics as doctors.
G*d bless him.
Billi
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Hi, Billi. Since you're being given the Dilantin for pain and not the epilepsy for which it's usually prescribed, you're probably also getting much lower dosages. The warnings you read about most likely don't apply at the levels you're maintaining.
Dilantin is one of those drugs that's been around for nearly ever and is really as safe as a drug can be, really, in the lesser amounts it's prescribed in for pain. Here's the site I rely on:
http://www.epilepsy.com/medications/b_dilantin_side
As you'll see, no user has reported problems here. That's a good sign.
I'm so sorry you're
still having sleep issues. It's terrible, you're right--but with luck you'll find yourself in a better working partnership with this new doc.
Best.
Roadie,
formerly Roadrunner