The complication of managing seizure disorder is way more of a challenge than I realized. Your situation sounds exceptionally tough. It does sound like your are getting high quality medical care.

I had a younger sister who lived 11 months with a seizure disorder. She passed away as an infant. I was old enough to take care of her and often did to help my mother. I can still remember dissolving the phenobarbital pill in a little spoon of water. It is striking to me that this same med is still a staple in reducing seizure activity. I can remember that the unpredictability that comes with this problem created so much stress for my parents and me, too. Mainly, I guess I want to say that I understand the deep powerful yearning that is felt to get the problem controlled so life can feel more normal. Then there is the disappointment when interventions don't seem to help as hoped for.

It's got to be so tough to have E and major depression. I wonder if the first is a factor contributing to the second.

Shez, you have been through so much, yet you seem to have a positive focus, despite the depression. You share pics with me that make me smile. It is good to see you around here at PC. You are a good presence for me, and lots of others, I'm. sure. I send you (((((HUGS))))) and I am glad that you come here to share with us. I like learning, from your firsthand experience, how various medications can impact you. It is good that you are accessing a first rate medical facility. I'll be watching your progress and hope you get some stability soon.