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i'm in a similar boat, it's funny I was trying to write a post about DID and seizures before even seeing this but my phone wouldn't let me...
I just started having seizures. The first was a grand mal while under the influence (and honestly this was the first and only time, lesson learned) of a hallucinagenic (mushrooms). Two weeks ago I was doing nothing (controlled or medicated) early in the morning on the way to work. I started to feel anxious and was thinking "there is no way I can go into work like this" next thing I know we are far down the road and my fiance is holding me up telling me I had a seizure (not sure of the technical term for this one but where you go blank and motionless and collapse, I fell into his lap. When he picked me up I went stiff) it lasted a couple minutes before collapsing again and coming out of it.
My therapist (first appointment was yesterday) is relatively convinced that the DID and seizures are connected, he specializes in DID so he may be onto something. Either way though, my last thought before going into that one was "There is no way I can go to work feeling like this". Typically when I either say "I can't handle this" or feel that way, I black out. So I avoid doing so, it was early and I didn't even think much of the comment but it probably was what set it off...
I also noticed the connection that the same day as the second seizure, was the same day an old abuser returned to my town. And I've been forced to sit face to face with him on more than one occassion since and I knew that would happen.
I don't know what the connection is but since you are the first and only person I've ever seen other than myself link these connections, I thought I would share my experience with you as well. I'm going to look up cataplexy episodes now and see if that's similar to what I've been feeling.
It goes back and forth with some doctors, some say it's seizures even though the blackouts can last a full year, others say it's DID. My t was the first I've ever heard say it could be both. It's a new look and it's been 20 (since developing DID) years of not knowing so I'm open to anything and everything that could get me better.
You can always pm me, I think it would be nice. These seizures terrify me, to talk to someone who experiences something similar is nice. I used to fall asleep all the time in McDonalds drive throughs, even while driving on numerous occassions. After the first seizure they suspended my license for 3 years but I already had stopped driving due to the sleep issue.
Please pm me if you need anything, you're most definately not alone.
Add- My fiance used to laugh and take pictures of me. I would drink a mountain dew and within 20 minutes, sometimes less I was passed out on the couch. I've fallen asleep with mountain dew in my hands so many times. It seems to make me tired after the first small jolt. But I've learned that even non caffinated sodas give me that jolt, it's the carbonation. But once the carbonation wears off, I'm more tired than I was to begin with. I stopped caffeine a few weeks ago because of its effects with my anxiety, and somehow not drinking it, I'm more awake and alert. Strange lol
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I'd lock my hands behind my head, I'd cover my heart and hit the deck, I'd brace myself for the impact if I were you.
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