I'm sorry you are having such serious struggles now. It's frustrating when things are wrong, but no one really knows until they to millions of dollars of tests & even then sometimes it's still a best guess.
keeping you in my prayers.....for God to guide the Dr's wisdom into figuring out what is causing your problems & for there to be a way for it to be taken care of......& sending you lots of gentle

's &

Know the unknown is difficult to deal with & a struggle to keep our faith strong.