Not familiar with this & had to google it. After doing so I'd say you aren't the only one on here affected by this. Some, like me, don't realize this is correct name for what they suffer with because it is so baffling.
If you are ever comfortable enough to discuss your past or present situation it might help people understand.
There may be more than one forum to consider posting in. As you read in the different threads of forums you may see post similar to what you have been thru. Thanks for sharing this.

Best wishes & keep posting.