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Thank you to both of the replies. Kris, mine sound similar to yours, in a way. I don't know if it's an "aura" but before both of them, as unhappyguy mentioned, I do feel like everything is getting far away, kind of like I am being pulled away from my body into my brain or something. It's hard to hear or talk to others. I mentioned in a previous post that I was experiencing something similar feeling to this a few days leading up to my second seizure and have in the past as well as just 2 days ago it happened quite a bit the other day. But no seizure came from the feeling. I kind of feel like I'm being pulled away but at the same time, feel like I'm in a fog and when people talk to me, ask me questions, it's very hard to answer them because I don't even really realize they are talking to me or expecting an answer. Everything just seems so foreign to me when I feel this way. Only twice has it led to actual seizures diagnosed by doctors. But with both of those seizures, I have no memory of the event whatsoever, only before I collapse and after I come back from it. I can and have, especially in the last year since the first one, get this feeling but never have one. When I feel this way I try to fight it and fight back, typically it seems to work but I tried it with the second seizure and it didn't. I felt like above mentioned and tried to talk to my fiance to keep in the "here and now" sense, but it didn't work at all, I just went off into lala land or whatever, I don't know where I went lol. Mostly it does help when I try to focus, do grounding skills I learned from the DID doctors, it's all different, but in a way it all feels so similar.
I have blackouts that seem very similar to the seizures, the feeling on my end at least. I get the spacey getting pulled back thing and bam, I come back hours/days/weeks/months/a year later not knowing what happened in between. The blackouts aren't accompanied with vomiting though, just a severe headache that lasts weeks sometimes. I can see though why my t thinks they are connected and why a couple other doctors before wondered if I had seizures, it's a very similar feeling. Just not the aftershock really.
unhappyguy, I'm sorry you live with epilepsy, I can only imagine with what little experience in this that I have, how scary it could be. I hope you've found comfort and a way to cope, something I'm still searching for.
The p-doc commented that my case is "very complex" I apologized... I know I'm a mess. I know I make no sense. I only say what I'm feeling, I have no clue what is happening to me. I feel bad that these doctors are trying to help me when who knows if we will ever find out what is wrong.
Are any of y'alls seizures followed by vomiting, ringing in ears and headaches? I don't know if I would call what I experience before hand an "aura" because it's not really a peaceful feeling, I'm not disturbed, I just am confused at this state and distant, feel very unattached to my body etc.
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I'd lock my hands behind my head, I'd cover my heart and hit the deck, I'd brace myself for the impact if I were you.
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