That is a new one to me - sounds not exactly fun

I'm not sure what your pain might be caused by, but your mentioning the Lyme test reminds me that I've heard that all Lyme tests are not equal and that the "Western blot" is more accurate. I don't know if you're in prime 'tick country,' but it might be worth checking out?

I have fibromyalgia in addition to psoriatic arthritis (similar to RA) and have found that physical therapy specifically for my pain symptoms has helped a great deal. Maybe this could help you to manage your symptoms while the docs are figuring themselves out...? I'm including the link to my PT office which specializes in chronic pain, to give you an idea of the techniques they use: corephysicaltherapy (dot) com (slash) aboutusfaqs

Finally, I know that all inflammation/joint stuff is supposed to respond to an anti-inflammatory diet. I have found this to be true, however it is also a lot of work!

Well, I wish you the best of luck and if those docs figure it out please let us know-

Feel better soon,
Willow