I'm not necessarily worried about passing down my disorder to future children. I know that will happen, but I think what I have is the kind of thing one could live with.

But if I thought my life as it was was absolutely horrendous, or if I thought the disease I would pass on would be horrendous, then I would absolutely not give it to my children. For instance, if I had familial fatal insomnia then I would never, ever have children. It would be selfish. And if there was no fatal familial insomnia then the world would be better for it. Call that eugenics if you like, but people will find any excuse they can for getting what they want. Kids involve selflessness, and I will absolutely always take their side over their parents' wants.

My main argument involves being a good parent and how hard that can be. Tsunami - it sounds like you're doing a great job because you do what you have to in order to make sure your kids get everything they need in life. I don't know if I could do that. I would never want my kids to suffer because I couldn't get out of bed, or if I ran off not knowing what was going on and didn't take care of them. I can only imagine how frightening that would be for a child. Unless I knew I could keep my disease at least moderately under control for the next 20 years, I would spare those kids that pain.