Hey tigergirl I just joined too and have been diagnosed by an internal medicine Dr who is very well respected in his field and still I am met with indifference at most turns when I have tried to get help with this. Most Drs seem like they do not even hear me and I am about ready to give up but what does that mean? Where do i go then? I have tried to teat it on my own and you can guess how that worked. I have tried all the medications he has recommended and have had very little if any reprieve. Some days the pain is the only thing I can literally see. if anyone knows or has any ideas for where I could even begin with this I will sure listen.