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Sep 01, 2012, 02:41 PM
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Quote:
Originally Posted by sidestepper
Started a partial hospital program, Rose76 is right it is draining. There are a lot of reality challenged folks there and that makes it hard on those of us that are easily startled and traumatized. They start talking loudly off topic or just suddenly get up and leave the room. They will be there longer until there journey from the darkness is over. I keep telling myself I have it better than some-they are not oblivious to their actions and behaviors, just helpless. It hurts to hear how people treat them and how much more stigmatized they are and that people talk about them in front of them as if they were deaf, something I can relate to, too. Still it is hard not to react with fear to the sudden movements. I know I need the program right now.
The only other option would be inpatient and --that I can't do. Ironically the Mayo Clinic, located in a city where I have been trying to move back to be with my family has a inpatient program for those who also have severe physical problems and is ADA compliant. If I had regular Medicare I could get in as they accept almost every insurance, but not with the advantage program, in state only! My pain doc asked if I didn't want to move closer to family for the surgery I need.  I told her I've been trying for the last two years, and now they(sec 8) just raised my rent, raised it more than the so called cost of living raise I got on the SSDI, so now I'm not even sure how I'm going to fix the car. I feel as if I have only two choices one. SU and two. a serious back surgery that I have to face alone.
I went to the surgeon this week and my back is too destabilized for any surgery except the fusion, with a bone graph, I went in expecting to talk about a simple cyst removal. That was a shock that took a few days to absorb. It took me mouths to agree to the simple surgery, I begged for more PT first and tried to get them to agree to another round of deep steroid shots w/ ketamine, but I've done every non-surgical treatment including losing weight and acupuncture. My pain doc is a good one and I trust the surgeon she sent me to, he was honest and straight forward w/ me and that is what I value. He didn't nay say my questions or put down the risks. He took his time asked if I had more questions and told me to call if I did. Yes the fusion can lead to more surgery's, and failed back and a whole lot more, my only other option at this point is to keep on as I have been and I can't, I need to do something.
My pain doc told me it was ridiculous to continue refusing to go up on pain medicines when we now have a date for the surgery(Nov-12th), and I'm considering Su. I'll be in the hospital 2-5 days then go to a rehab place because I live on second(first to those outside of USA-I think that is how it goes? Up one flight off the ground.) floor and with a cat--he is great but they prefer human companions to live with the surgery patents. So she increased the short acting pills and I take the patches everyday. Since I'm not driving I guess it doesn't matter. She believes that this will help with the depression.
Sorry this is so long, I'm only posting here tonight. It's been a long week. Thanks for being here everyone, PC is great to have. I wish you all the best weekend. Chat more tomorrow after some long sleep and a video!  Gotta go tell my family the news.
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((((Side)))) sending many comforting hugs your way...
Please keep posting and let us know how you are doing. Will be thinking of you  Rose
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