Pat,
I am so happy to hear about about Bill's medical status.....that has to be a great sigh of relief to be able to control the condition with meds rather than the scarry waiting line for a transplant.
And an engagement.....wow......how much more wonderful news can you handle.....lol. I am so glad that things are looking up for you....it's the time to sit back & enjoy life while things are going good.
I agree with you about Dr's. I think it is necessary to have 2nd, 3rd, 4th......opinions until I feel I can trust a Dr. I know that I hated my mothers oncologist surgeon from the beginning & thought my mother should find a better one. Unfortunately, she liked him & everyone told her how good he was. There is no Dr in the world that is great when he won't even deal with the reality of her death....& continually telling her that he "got it all". She loved him & told me that he saved her life. (she died just over 6 months after the surgery). Unfortunately, at one of her important hospitalizations, I was with her everyday, but not at the right time to force my requests to be there when they were having discussions with her about her care. I was continually left out. I guess that was why I thought there was time....because I was never told that she was being discharged. It does seem like you have to plant yourself in their room 24/7 otherwise, you will miss the one important time that you need to be there. The last hospitalization of my Mothers, I did live in her room 24/7 for over 3 weeks....& her Dr still claimed that he "got it all".....even as they were taking her daily for x-rays, tracking the spread of the cancer to her lungs.
Those experiences have stuck in my mind, & now know what I should have done differently. Unfortunately, I probably will never be in the same situation again....I just feel the need to be able to communicate to others in a similar situation how to protect themselves against what I went through & how it tied into the ID theft trauma I went through.
You are a great example of how to handle medical situations & people. It is wonderful that your experience has brought your own family the care that they need.
You are awsome & I'm glad all these great things are happening to you,
Debbie
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Leo's favorite place was in the passenger seat of my truck. We went everywhere together like this.
Leo my soulmate will live in my heart FOREVER Nov 1, 2002 - Dec 16, 2018
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