Yikes, Anika, that's quite a bit of concerning stuff...I sure hope it can get sorted out soon. How frustrating all the tests with inconclusive and changing dxs! Good idea writing everything down.
Where's a real life Dr. House when you need him? (The brilliantly sifting through perplexing symptoms part, not the ways he sometimes goes about testing his theories part(!))
Wow, I sure hope they can figure it out and get you to feeling better very soon....