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Awh Anika, this sucks to hear! I hope you feel better soon... Good luck with the doctors, even though they're mostly useless.
But I have to say, this sounds suspiciously like Lupus! My Mum had it, so I'm very familiar with how it looks & behaves.
But there's news. If your ANA test came back negative, that doesn't mean you don't have it. Sometimes your ANA levels can go away & come back, depending on the phase of the illness. And a small percentage of lupus patients don't even have it! I'd also get tests done on your anti-DNA antibodies & anti-Ro antibodies. The anti-Ro especially because that is the antibody specifically that causes the rash & photosensitivity.
*hugs*
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