Quote:
Originally Posted by Anika.
The dr was very nice and thorough. She said between the malar rash which looks very much like lupus, the ulcers in the mouth she said because they are on the tongue and roof of mouth are both tell tale signs. When she asked me about previous stuff I mentioned the solar keratosis my gp had seen about a month ago, she looked at it and said it looks like keratosis that is seen in systematic lupus eureth?? And she also said that celiac and lupus are often seen together as well as celiac with other autoimmune diseases.
She went over my whole history which took a long time, but she said there were lots of things they need to look at such as the problems I have had with my kidneys and lungs. She thinks it is Pleurisy with the lungs right now, which is also often seen in lupus.
Sooo I got a whole ton of blood work to get done up tomorrow, and chest xrays. She said she will get my gp to send me to an Immunologist, the nearest is about 5 hours away.
Shay, thank you, that is exactly what she said about the ana tests. So hopefully this time something shows something. She said they would do more thorough tests.
She told me to change the light bulbs in my house if I had the new compact energy efficiant bulbs, she said they give off uv rays and can trigger the rashes.
Omg I am sooo tired. x.x I am on no meds at all so thankfully at least that doesn't complicate anything.
Love you guys, thank you for the well wishes  |
I have to say, Shay's post was quite timely,
It makes perfect sense for you to not know how you feel about the dr's theory-diagnosis. I think all of us who have been misdiagnosed only to find the right one have felt that way to some degree before.
But as Shay said, if it is Lupus, at least you have an answer. From what I gather, this doctor is new? Yes, the chroniling of health history from birth to now is annoying, but in my experience the good drs are the ones that do that. She sounds like she was very thorough and able to connect the dots well,
That thing about the lightbulbs? Seriously? Wow. I don't have lupus but other skin flareups so i ain't taking any chances.
Been reading this thread and the other. I haven't gone through as much as you have with the battery of tests and numerous wrong dxs, etc. You are ****ing strong as hell, don't forget that, ok? I know ppl that would have totally crumbled by now.
Can't wait to hear updates. Rooting for you girl. Cheers that you've done all you've known to do--with the celiac stuff and your diet, etc. I'm sure that helped simplify things.
