I am so sorry you werent told. You as the child certainly had the right to know. Im hoping you werent told because people were trying to protect you.... But i bet it sure doesnt feel that way. As a former special ed teacher, i encouraged parents and children to talk about their diagnoses in a way the child could understand, and gave them resources (there are tons out there!) for helping their kids understand. I think youe got every right to be upset.