Hello Ajtgjm welcome to the forum! As you've no doubt seen, there's not a lot of traffic in this particular forum, but maybe if you post more about yourself others will emerge who can relate.
I'm with you on finally getting a name for the disorder, whether the options for treatment are limited or not, at least it still means having more direction when it comes to finding ways of dealing with it. Are you seeing a therapist or anyone at all to help you?
Hope you feel brave enough to keep posting
Torn