i spend months struggling on my own whilst looking for a carer to assist me with basic things like bathing, dressing etc. i just get them used to my routine then they leave. leaving me struggling for months on my own to look for another one...i do not have the energy for this to continue, i am sooo tired of struggling i don't know what to do. when i talk to the professionals they just ask what i am doing to find a carer but no offer of help, the PA finder service for the area can't find one for me because my care allowance (direct payment ) only allows me 8 hours a week , i need help getting up on a morning so need it split through the days, only carers here don't want to do odd hours here and there, they want blocks of hours, i understand why, but that doesnot help me.and to top it off, i am still living in my unadapted home and agencies will not let their carers come in because my front door lock is broken so they would have to kick the door to get in. i can't aford a new door and think it a waste if i could as my home is going to be adapted soon so will get a new wider door then.
i am sooo fed up struggling, have just spent 12 days with no help at all and now my carer has just told me she is not coming in at all this week either, and is not sure if she will come back after that either too.
why is life so difficult when all i have ever done is try my best to help others in any way i possibly can. have i really got it so wrong, should i have not given a toss about anyone but me? well it seems that those who don't give a toss have a much easier life.