my disability is classed as pretty bad, but because the dx is uncommon and although it affects my physical abilities of walking, sitting up reaching/picking up things etc it is classed as a mental health condition so the adult services run a mile to avoid helping me, the mental health team are great but have told me many times they don't know how to help me and when i tell them, they are so limited in the physical support they can offer it is nonexhistant!
I have been fighting 4 years for help to adapt my home as i am 24/7 wheelchair user. i can't even get an electric wheelchair eventhough i can't push myself in my manual one so had to buy my own scooter to get out of the house.

i totally understand the difficulties and horror stories you have, i have a whole list too, from nightmare carers, college classes being relocated into rooms with steps or on the third floor with no lift to get there and loosing my deposit because i did not get up to the class, to the agency employed by the council to help find carers being relocated five miles away to a town which is impossible for me to get to, to local bus company changing their guidelines on which scooters they allow on the busses so i no longer can use them, yep i got em all!

it seems to me that unless you are terminally ill or have a common dx then you are not considered worthy of help.