Thankyou Bmee, it is not silly, but is very unlikely!

i have a dx of dissociative motor disorder,

it is caused so i am told by having big traumas in your past that you were unable or not allowed to deal with in an appropriate way, so they are now being displayed in physical symptoms which you have no control of. usually it presents suddenly and goes within a few months, if it lasts for more than a year it is very unlikely to go at all.

people with it sometimes respond to the same treatments as those given to stroke victims, and some degenerative muscle disorder that i can't remember as the loss of ability is the same so the physical and psychological therapy techniques used benefit both. really it needs intensive treatment in a hospital where physio, talking therapy, occupational therapy and nursing care are all provided daily for around 6 months! problem is it is a post code lottery as to whether you get treatment or not and my area does not fund treatment for this.

Dissociative motor disorder can display as anything from weakness of an arm to total loss of movement in all 4 extremities, core stability (sitting up) internal muscles and in the worst cases it can affect the heart causing death! you have probably have heard the saying ...he died of a broken heart... well it is possible!

I think i have quite a bad case as all 4 extremities are affected - legs totally paralysed, arms weak, hand/eye coordination is affected meaning i miss the object i try to touch (past point), my internal muscles are affected too, i have no sphincter control either bowel or bladder, can only sit up if aided by balancing on my arms or by being strapped into a chair/scooter by a full 5 point body harness, my breathing is not great and i have lots of trouble with swallowing & digestion as the muscles in my throat & digestive tract are very sluggish/weak. I get very tired very quickly and if i get cold it takes hours to warm up. I also have hyperhydrosis which doesn't help as the meds for this prevent the ability to control my own body temperature. I have multiple allergies which are unrelated to DMD and asthma which i have had for over 20 years too. oh and a very low immune system which it is unclear if this is part of the DMD or something else. i never wanted this condition, never 'put it on' and have all the way through it so far wanted to walk, sit up, be normal again and hate having to have help or any attention on me. i have always been a shaddow, quietly beavering away in the background , seen but not heard, even when i was the head teacher of my nursery school i hated having to do the christmas play speach or the open days etc because i was much happier just doing my job teaching the children. i hate in the bigest way possible attention being on me and always brush off any praise i receive even if it sometimes is deserved because i just do what i do because i enjoy doing it not for reward, praise or gain.

hope this helps you understand a bit about it.