Welcome! I'm sorry to hear about your pain, and your losing posts. Until you can realize what error you are making or if it's a server problem...double check you are following the proper steps to posting... no offense... also in the meantime, once you have typed what you want to say, highlight it and hit CTL C (control "c") this will save it and then if it disappears, you go to the post window and hit CTL V (control "v") and it will paste it for you.
Sometimes if you lose a post you can use the BACK button to return to the posting window before you tried to send it. After you hit continue, hit the return to post (view your post) to make sure it is what you expected.
As for pain management, I'm an old pro.

I have CMP also..nearly 20 years and I am disabled from it and PTSD and a host of other things that happened to me due to an injury.
My pain specialist is not medical..but a psychologist. He specializes in pain and stress management. I do take pain med, but I have my MD prescribe it. I find most neuros can't be bothered with "just" pain (that they think is all in the head anyway.)
Hope you like us here at PC! Let us know what specific ideas or questions you have.