Quote:
Originally Posted by GirlOfManyFaces
"everyone need caring for and those of us who are totally alone in the world often miss this, i too would love to be in hospital being cared for, but know this is not the answer, i need to learn to care for myself because only myself will never let me down."
I don't want to be helplessly cared for. I just need some help and advice from somebody who knows more about my issues than I do... I want to help myself... But can't
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that is what i meant, i hava dx which even my care team know very little about so can't help me, there is a hospital at the opposate side of the city that deals specifically with my dx but i can't get funding to go there. I am the last person who would want to be helplessly cared for, i like you need help and advice to be able to help myself care for and deal with my own difficulties, reather than as it is at present when i am being left to reinvent the wheel on my own with no idea how it was built in the first place!