that is what i meant, i hava dx which even my care team know very little about so can't help me, there is a hospital at the opposate side of the city that deals specifically with my dx but i can't get funding to go there. I am the last person who would want to be helplessly cared for, i like you need help and advice to be able to help myself care for and deal with my own difficulties, reather than as it is at present when i am being left to reinvent the wheel on my own with no idea how it was built in the first place!