((All of you))),
Yes, it is hard work, and often very lonely because unless someone has personally experienced it, they simply do not understand the challenge and how debilitating and tiring it can be. That is the one thing I hate about it too. I totally understand why people want to "isolate" so much with it, because it seems impossible to explain it to anyone. And it is equally challenging to understand it for one's self.
As I am writing this I am actually having a difficult day today and my husband is vacumming and cleaning and hustling around me and there is no way I can explain to him that right now I am struggling and he is triggering me. Ugh.
So now I have to find a way to "not let his problem become my problem" and find a way to let go of the frustration and find a "calm". Yes, it is a challenge and often "tiring". I am going to do my nap so I can slow down and let go and if he doesn't get it, tough.