Welcome to PC!!!
I am sorry you are having to contend with this and I can understand your frustration and concern. As Lynn mentioned there are support groups, and you should not have to go through this alone. You are not alone here either. Also, if you have any questions about the lab tests and for monitoring, I am happy to help, please PM me. Keep in contact with your physician as any symptoms change or new ones develop; it is key to stay on top of them which it sounds like you are doing and I give you so much credit as I know how tiresome this can be. Hang in there and know that you really are not alone. (((((Booklover821)))))