if the crisis team were involved a while ago, did they not pass you on to the recovery team or some other team? it is strange if they did not.
getting to know things through reports is extremely common as are incorrect reports, this however does not make it right, you should always ensure a follow up appointment with anyone who is assessing you so you have the opportunity to question the report findings.
as to asking your doctor about a second opinion, now the former PCT funding purse strings have passed to GPs it is their responsibility to request a second opinion so you were right to go to him if you do not have a designated care co-ordinator or social worker. that said GPs do not like being questioned about M/H dxs as most have very little knowledge in this area. the best thing i found was to do my own research, gather as much info as you can to support your suspicion, then present it to your first line care (GP, SW C/C-O) If you are not taken seriously or nothing happens, take it higher to their bosses/ practice manager, if still nothing happens take it to the corperate complaints manager of your local council..that usually gets results!
PALS is another good service, but i am not sure it will hepl you unless the dx was made by someone at a hospital.
also you should get a copy of any reports written about you as all medical professionals have to cc you into any letters/reports they send to another medical professional about you. if you don't get one then you are well within your right to request it.
Last edited by yellowted; Apr 24, 2013 at 03:45 PM.
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