Morning all. Went camping this weekend to help some friends put on a trail riding competition. It was fun, but tough and emotional. My daughter went, but we had to call and have her dad come get her at 1am on Saturday morning because she felt too ill to stay. It was so hard seeing her struggle physically and then emotionally because she just cannot DO what she so desperately wants to, and to feel so helpless to do anything to fix things for her. I WISH that specialist could get her in earlier. Oh, and I cannot tell you how many people have horror stories about people they know or relatives with immune disorders. A couple of times there was quite literally sweat running down my back while people were talking to me about Aly and offering suggestions and telling me about the horrible things that happened to their friends with X immune disorder.

Also, I gave my friend money for Aly's meals while we were there, and after Aly left, she gave it back to me. I dropped it somewhere and now I feel like a total idiot and am really beating myself up about it. It was "only" $40, but I just feel so stupid.