Quote:
Originally Posted by jadzea
I am in somewhat the same boat. I was diagnosed with MS over 25 years ago. I have had exacerbations which were treated traditionally as MS. I took MS medication for years. Then, after all this time the doctor decided I do not have MS because I am not getting worse. He cannot say what I have nor can he explain why I feel the way I do and why I react so well to the medication. So, I am in limbo again. .... I am angry and frustrated. I don't go to doctors anymore and I don't talk about it with my PCP. I feel so alone dealing with this issue and my inability to do normal things. I wish the doctors could experience how I feel. I don't think they would be so quick to dismiss my symptoms then.
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(((jadzea)))
I'm not a doctor ~ BUT... I did care for several people with advanced stages of MS as a CNA at a nursing home, for 3 years. I quickly learned that there are different types and phases of MS. In the early stages of the disease, it is not uncommon for symptoms to come and go. In fact, people usually aren't diagnosed with MS until at least their second phase of the symptoms strike.
Multiple sclerosis - MayoClinic.com
Multiple Sclerosis Support : MS Treatment : MS LifeLines®
I hope that this helps you feel a little better.
Gentle hugs to you!
