Quote:
Originally Posted by amandalouise
my suggestion go according to what ever your own treatment providers say is going on with you. they have told you that you have epilepsy. epilepsy and other seizure disorder type seizures have to be ruled out in order for a person to have DID.. the type of seizures with DID are different then those with epilepsy.
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Thank you Amandalouise! My neurologist ran an EEG and on that EEG there was seizure activity so I was officially diagnosed with epilepsy. The episodes I have that the psych doctors have said were dissociative symptoms, the neurologist is thinking they are simple partial seizures but says we wont really know until the epilepsy is controlled on medication.
When I called my therapist to let him know the epilepsy diagnosis he went on to insist that I was DID and that I may have epilepsy as well but I do still have DID. He seems pretty sure about that. I'm not so sure. But he wants to continue therapy with me... But for him to not have an open mind that perhaps the epilepsy are what has caused my dissociative symptoms, I really would like to start over with a new therapist/psychiatrist team.
I really don't think that I have DID. It really sucks that it's something physically wrong with me that can never be fixed completely without brain surgery but it is what it is. It was always hard to fully accept the DID diagnosis and now the epilepsy diagnosis really makes a lot more sense. But I guess my T doesn't feel that way, or perhaps he's just obsessed with the idea of it being DID he's not seeing the whole picture.
ETA: Originally they did think I was having psuedo seizures and my T and pdoc were pretty convinced that the psuedo seizures were DID related, so sure that they convinced me I didn't need to follow up with a neurologist because I would never have a seizure again. Eventually though I decided not to trust that and to just be sure and was pretty shocked with the outcome. I would have preferred they be psuedoseizures.