Dear, like you, I live in pain. Have you had much neck pain associated w your Tmj? I ask this because I have cervical degenerative disc disease and chronic and severe muscle spasms in my shoulders, neck and tension in my jaw that causes Tmj. I wonder if our pain is referred pain from your neck or skull base. Just a thought that may help in your medical venture. Like you, it took me multiple years to receive a diagnosis. Prayers to you on your journey. Pain can help to build a strong character, but learning to live with it in the meantime is hard. Hang in there, you're a special chosen one who can fight in the pain battle.