Thank you as always for your insight! I went through testing for everything under the sun because of health issues, including the ocular migraines, bizarre visual field test results, pain etc etc etc. I had a positive ANP antibody (ironic 'ANP' haha) which would indicate Mixed Connective Tissue Disease, but they thought it was a false positive so sent it out again and it was false. Reumatologist declared fibromyalgia after MRI clear for MS, and a billion other tests for autoimmune diseases. I exercise everyday, meditate, eat & sleep well, avoid alcohol etc, but I did forget about the caffeine...I think I could use more grounding techniques to stay in the now (so very very very hard). Thank you for this, I will mention it tomorrow to t. The med that the neuro gave me for the migraines is Reglan (which I only take prn and helps, but makes me sleepy) I have to take that because anything else upsets my tummy. I go to the chiropractor every week as well which helps a lot, but I must say that the headache I got in therpay last week felt odd to me. Keeping track of them is a fab idea! Now if I can just remember to keep track hahaha. I write lists all the time, but I think I definitely also need to honor just how much I'm doing. I know that a big part of not remember some things is that I am just doing so very much, the job of 5 people really. I have always chalked it up to that anyway, even when I have had zero recollection of what I was thinking or anything else when the time is gone. Sometimes I can look back and if I think in sequence, I can get the time back...sometimes I can't. Sometimes it feels so hard waiting a full week to get my one hour with my t.
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Originally Posted by amandalouise
I used to get ocular migraines before I lost time...it turned out to be not related to my having DID....my treatment providers told me that because they were not a daily issue and didnt happen every single time I dissociated they were not related, my therapist and I assumed they were related because migraines by their self can cause a person to lose track of time and have memory problems...after taking many tests and documenting what was going on when they would happen, what triggered them, it turned out my migraines were part of my having Multiple Sclerosis and consuming things like caffeinated drinks/foods Now Im on a migraine medication and decaffeinated foods/drinks they rarely happen.
I also got other types of migraines from stress/caffeine and MS but no longer get them thanks to some great MS meds/migraine meds and stress reduction exercises like breathing and grounding.
Suggestion maybe you can keep a journal of when you have these ocular migraines and what triggered them, so that you can live ocular migraine / migraine free.
Another suggestion maybe you can contact your medical doctor who diagnosed you with ocular migraines. they can prescribe the right meds /diet and exercise that will stop them from happening.
I still get regular headaches sometimes that are part of my dissociative problems which is pretty normal for some dissociatives to have because dissociation is a normal reaction to things like stress/anxiety/depression and other things to.
by doing my breathing/grounding/yoga and other relaxing exercises I am able to live headache free most of the time..
maybe your treatment providers can teach you ways to ground/relax yourself so that you will also be able to live relatively free of the headaches.
forgetting what you did when ....well that can happen due to many things too like stress, age, anxiety, medications,..... and does happen as part of dissociative issues.
one thing that helps me with this is letting my treatment providers know this is happening so that my meds can be adjusted/changed and we can come up with plans to fix the problem like keeping a to do list and crossing things off once they have been done, getting enough sleep and eat right since sleep deprivation and poor eating habits can also contribute to dissociation and memory problems...
suggestion keep talking with your treatment providers. they are the ones that know you best so they will be able to teach you how to control your dissociative/memory problems.
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