Fibro is truly a cruel illness- for many reasons already mentioned. There is nothing worse than being in constant pain (for years), loss of nerve sensations in arms & legs, overwhelmed with exhaustion and so sleepy you can't hold your head up and then have your doctor tell you to make an apt with your 'shrink'. There is nothing simple or manageable about this life. It may take several to many years to get a proper diagnosis....and several more years to discover the combination of effective treatments that address the individual personalities of our disorder. It is likely I have had this since I was 6 years old.....realized something was 'really wrong' around 2005 and finally diagnosed in July of 2007.

Fibro's constellation of conditions in my case involves, O.A., CSA & OSA, IBS, idiopathic polyperhiperal neuropathy, ADD/fibroFog and things I can't bring to mind, because....I've lost my mind somewhere along the journey. Having various conditions presenting themselves over the years, makes it difficult to get a firm diagnosis. Gathering the needed support to go through the process of making the necessary life changes...is another installment of frustration.

Mental and physical therapies, medication, life style adjustments, financial stressors, shifting of the people who support us... so much to face, when we are at our weakest. There is no "easy button". The demand is that we must choose to engage (when we don't want to) and find the strength in someone larger than ourself to begin to dissect and rebuild our world.l

I hope to share more on another blog- for now I am tired...look forward to the exchanges.