I'd go for the second opinion in person. Without hesitation, actually. A lot has changed since you were 9, and now this pdoc is a seasoned 60 year old doctor.

As far as meds go, I've been on dozens of them with rotten results - everything from rashes to suicidal thoughts to living in the toilet. my pdoc continues to plug away at things with me, and we take things one day at a time. Currently we're trying tenex, which is generally for high blood pressure but some off use might help me he said, so I'm giving it a go. Patience is the only choice I have when it comes to meds, as like you, I'm that 1 in 100,000 side effects!

Good luck!