Thanks Newtus. Watching these links that you post has given me a lot of insight and a kind of gratitude, too.

I have to catch myself from really obsessing and watching a lot of these, but generally I am glad that these self documentaries exist, so it gets the info out into the public.

One I watched on youtube was the brother filming his sz brother. One sz brother asked to be filmed when he was not well. That way I guess he could have some awareness about how sick he could get.

Sometimes it makes me so sad that this illness is so devastating.