I'm so sorry pegasus. That's a rotten disease. You don't deserve to hurt. Are your doctors addressing your level of pain? Please be honest with them about how much you hurt. I am sure you are taking medicines already. Have you tried anything like electrical stimulation, or diathermy? Do you have a dehumidifier in your home? Sometimes that helps if summer humidity is a factor in flare ups. I hope you will get some relief soon.