It IS hard. It's not what you planned. And I'm sorry your family doesn't offer support. I was more eased into my diagnosis of lupus (it and Still's seem quite similar symptom wise), because I couldn't stand my evil doctors so I fired them so it took years and years until I finally got some sort of answer. I was 26 when I fell ill and in a way I'm glad I didn't know what was coming.

My family doesn't get it either. They have made up a much more mild diagnosis that they say I have, they refuse to say I have lupus because they don't believe it. Parents can be really weird.

I mean. My dad had lot of weird illness and deaths around him. But I was never allowed to be ill because that wasn't my part in the play. It seems like we are given parts to play and when we don't play them, someone will get mad....