Hi - recently diagnosed with DMD (march 2013) - remission soon after then erupted into a full-blown occasion in Oct 13, worse than initial diagnosis. Mine is located solely in the right arm and shoulder with some numbness and tingling in the right hand. its bloody annoying more than anything as I do not appear to have lost any real function but I am now worried about driving / cycling as some of the twitches / convulsions are quite severe. (threw coffee 10 feet across the lounge carpet and dropped the cup the other day.) had an MRI in march which came bake OK but have now had to re-present myself to my neurologist to be referred to a specialist unit in London dealing with obscure motor disorders - anyone else exhibited / experienced such conditions and how did they deal with them / get them treated?
Many thanks.