Thanks all for your replies and I am sorry to learn that you have been through similar situations to mine. We just have to be thankful that now, I guess, we are getting the right treatment.
DS - am going to my pdoc next week (he does'nt know anything about this) so he will be quite surprised I am sure!! or probably not

I was diagnosed a month before my 40th last year, it was a hammer blow. I feel for you.
take care all