Yea I have issues with immune system which might be the reason my body reacts to bites and minor injury in a weird way. Problem is one doc says this one says that and at the end some jerk doc wins and says I don't have immune system issues (although I test positive). I know I have an issue and some docs just likes to oppress people and a lot are told most patients with these immune system issues are just malingering... In the past they "diagnosed" people with pains and aches with "WB" to let the next doc knows. (And yea, it means whiny b****.) I know of all this, stillll they get inside my head and I tell myself what if they are right what if I'm just trying for attention or want to create problems for them? What if I'm not sick at all?

Planting doubts is an easy thing it seems.

Anyway.. this new thing is not at all like the old "wont heal" stuff. It sort of was when I started the thread, but now the area around the tick bite flared twice and I've never had that stuff before. It has never spread or became worse than what was there originally. So this is brand new.

I'm bracing myself and diving in once I get an appointment. My mom had Lyme for almost 2 years before she was taken seriously. She fought hard and won and finally got treatment but by then it had progressed too far so she will never be healthy again.

No, there are no patient advocates. I have had my psychologist going in with me once. We have the right on paper to bring anyone in as support but in reality if they don't want witnesses they will kick out whomever is with you. It's against the law but it's that or they wont talk to you at all.

Recently a Muslim woman who traditionally don't greet men by shaking their hand was turned down from ER care! Adapt or forget care. That has been said to me a lot when my Asperger's has gotten in the way, like I freak out if you touch me without warning me. I was always told if I really want treatment I have to stop having Asperger's for the time I'm with the doctor. They don't make exceptions. Either do it their way or off you go. So I let them do things to me which I find abusive and then I go home and shake and cry for a week.

I love doctors here...... so kind.... so understanding.